About Prader-Willi Syndrome

Prader-Willi Welcome!

My daughter, Little Miss Adorable, has Prader-Willi Syndrome. If you are a parent of a child with Prader-Willi Syndrome, let’s connect through the comments on this blog or Twitter  @specialneedmom2.

Prader-Willi Syndrome might seem scary at first, most unknown things are.

But, with time, extra support, and a rich life with people who love them, your child will be a star.

More posts about Prader-Willi Syndrome or Little Miss Adorable:

Amazing Grace – a special thank you

A Story of Angels – Before you were born

‘etre,’ to be – or if if it ain’t broken, don’t fix it thoughts on Growth Hormone Therapy (rGH) and PWS

Little Miss Adorable’s Story – from there to here

Little Miss Adorable – Speech, Language and Toddler Self-Defense

Prader-Willi Welcome

The Princess Gene

Show me the money and failure to thrive

Stab me in the heart with a rusty spoon

What does Prader-Willi Syndrome mean?

Little Miss Adorable

Information about Prader-Willi Syndrome on the web:

Prader-Willi Syndrome Association USA http://www.pwsausa.org/

Foundation for Prader-Willi Syndrome Research (USA) http://www.fpwr.org/prader-willi-syndrome-research

Foundation for Prader-Willi Syndrome Research (Canada) http://www.fpwr.ca/

Little Miss Adorable & Dandelion

Please add comments about Prader-Willi Syndrome and how it’s touched your life or links to other sites about PWS.  Thank you.

Copyright notice:

©Angela halfpastnormal (2012)  All work in this blog is my own and subject to Canada’s copyright laws.  If you wish to copy all or a part of any of my posts or blog (including re-blogging, posting links to my blog on sites I do not authorize, etc…) please contact me via email first:

angela{dot}halfpastnormal{at}yahoo.ca

2 Responses to About Prader-Willi Syndrome

  1. Leonie says:

    hello, we also have a daughter with prader willie syndrome. She is our sunshine. through her i’ve learned to see the beaty again. we are the parents of two beautifull daughters. the oldest has turned six two weeks ago. and the youngest will be three in about a week.

    nice to read about mothers with special needs childeren. al though i don’t think of myself as a special needs mom.

    goodluck with your blog.

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