Angela
I am a Special Education teacher who blogs about my super-powered special needs family. My 3 year old has Prader-Willi Syndrome and my 5 year old has Duchenne Muscular Dystrophy and Sensory Processing Disorder. The odds of these random genetic events occurring at the same time are astronomical. When you add our typically developing one year old baby boy to the mix, you have a very busy household!Our lives have too many appointments, too many school problems, and are generally too busy as we try to live life to the fullest.
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Tag Archives: NICU
Prader-Willi Welcome
My daughter, Little Miss Adorable has Prader-Willi Syndrome. If you are a parent of a child with Prader-Willi Syndrome, let’s connect through the comments on this blog or twitter @specialneedmom2. Prader-Willi Syndrome might seem scary at first, most unknown things are. … Continue reading
Posted in Prader-Willi Syndrome
Tagged NICU, Prader-Willi Syndrome, PWS, Special Needs Parenting
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Amazing Grace – a special thank you
As crappy as Little Miss Adorable’s start in life was, we remain grateful to (most of) the doctors and (most of) the nurses who helped us along the way. I cannot say enough about the nurses in the special care … Continue reading
Amazing Grace – a special thank you
As crappy as Little Miss Adorable’s start in life was, we remain grateful to (most of) the doctors and (most of) the nurses who helped us along the way. I cannot say enough about the nurses in the special care … Continue reading
Posted in Healthcare, Prader-Willi Syndrome
Tagged motherhood, NICU, Prader-Willi Syndrome, PWS, special care nursery
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