Rage against the Hospital

Stories drift across the playground.  Neighbourhood moms stand together, whispering while their children play on swings.  Moms cry among themselves, shake their fists, and no one answers.

My sister-in-law’s baby was still born.  They left the body in the room with her for two days.  She was completely traumatized…

Has he had an MRI yet? You really should ask for one…

The ER doctor did not do the pregnancy test as I believed, and sent me for x-rays and prescribed narcotics instead.  I found out later was 6 weeks pregnant at the time…

Most people wouldn’t even known they were pregnant at that point, they wouldn’t of known they had miscarried and just thought they had a heavy period…

When my son was born he was blue.  I could see it in his fingernails.  They sent us home and then I went to NINE different doctors.  They kept saying he was fine, that he had his father’s colouring.  By the time I got to Sick Kids Hospital he was dehydrated and his oxygen levels were 38%.  He had emergency heart surgery that night.  Now we’re dealing with brain damage from oxygen deprivation…

They refused…

They said…

Mothers ask why.

No one is telling them anything.

But mothers are talking.  We’re standing together beside the playground, whispering.  We try to console each other, “Maybe it’s for the best,” or, “You know, my oldest had the same problems too, and he’s ok,” or, “Have you tried…”

I am tired of crying.  I am pissed off.  I want change.

I want to start a movement. Rage against the hospital.  Rage against the healthcare system.  I want the people in charge to listen to the stories mothers tell.

I understand that this is a system.  Healthcare in Canada (and most other places) is essentially a bunch of people who try to work together to help others.  Fine.  But it is a system – a giant machine where everyone has a niche, like little cogs in a socket.  The patient. The nurse.  The general practioner.  The specialist. Everyone has a role to play.

The problem is the machine needs oiling and some cogs are broken or missing – we need more caregivers, we need more frontline staff, we need more and more.  We need the people who are front line staff to listen.  And to remember their patients are people.

We know that the people who are the little cogs in machine are over worked, over tired and burnt out.  This is not conductive to quality healthcare.  No one is listening.

No one is asking questions.

Why did NINE different doctors think a blue and dehydrated newborn was ‘fine?’

Why did the doctor not order a pregnancy test for a woman who told him she was trying to have a baby and was concerned about an ectopic pregnancy?

Why are we waiting for testing while the child falls further behind?

Why are medical staff insensitive to the needs of a mother who experiences a stillbirth or miscarriage? 

Why? Why? Why?

 

Please share your Rage against the Hospital stories below:

 

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About Angela

Super-powered, Special Ed teacher and special needs mama to FOUR (!) children with an assortment of special needs; including Duchenne Muscular Dystrophy and Prader Willi Syndrome. Our family features a heavy dose of good ol' ADHD). I blog about our halfpastnormal life.
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2 Responses to Rage against the Hospital

  1. I hear you! I took my wheezing, blue baby to the emergency room once where I was told his oxygen levels were very low but there was nothing they could do to help me because the on-call pediatrician didn’t “feel like it was worth coming in for.” SERIOUSLY?!?! We left and went to a different place with 24 hour in-house pediatric care and he was helped immediately. It’s a horrible helpless feeling when you KNOW something is wrong with your child and the people you are supposed to be able to go to for help refuse to help you. I don’t know how to fix it. I’m afraid our American system may be even worse off than the Canadian one. A lot of people in Michigan cross the border illegally to get help on your side of the lake. Just like the Mexicans cross into Texas! It’s crazy!

  2. Angela says:

    It’s pretty scary on both sides. I think most people who go into health care *want* to help others and get burnt out. Not good.

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