What matters to the average nine year old? Birthday party invitation and the stuff of a nine year old with DMD

What matters to the average nine year old?
Birthday party invitation and the stuff of a nine year old with DMD


A couple days ago a nine year old with Duchenne Muscular Dystrophy passed away. Nine years old. Nine.

Dogs live longer than this child did.

For you folks out there that know me, the long-time listeners, first time callers kinda people, you know I tend to shy away from the serious stuff. Because there’s enough of it out there already, and I’m already so busy with the challenges of daily life (unpacking after our recent move and getting the kids to school and various appointments) I’ve become kinda short sighted in all this.

Most days I can barely see beyond my cup of coffee.

And honestly, that’s not a bad thing. The land of denial is a safe and comfortable place. But, sometimes something happens that jolts you out of complacency and hits you. Hard.

Like a nine year old passing away from complications resulting from a common cold.

A freaking nine year old.

I don’t pretend to know the family and this is their story to tell, so I’m leaving it here; but I just want to say that Mr. Sensitive is turning nine this summer. Nine. And we’re truly blessed with good health or freaking good luck – I don’t know which it is – although all the kids had very bad colds and upper respiratory issues this winter (the Dunk ended up on inhalers); not one child had the pneumonia that swept through our town. Friends, family, and even their teachers did.

So we’re lucky, I guess.


I can’t imagine what this boy’s family is going through right now, but my thoughts and prayers are with his family, and all families touched by DMD.





About Angela

Super-powered, Special Ed teacher and special needs mama to FOUR (!) children with an assortment of special needs; including Duchenne Muscular Dystrophy and Prader Willi Syndrome. Our family features a heavy dose of good ol' ADHD). I blog about our halfpastnormal life.
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