A BIG HELLO!
Did you just stumble across my blog in search of a genetic disorder? Please stick around and visit for a while. I would love to get to know you. Feel free to add comments or links about anything that touches your life.
It can be lonely in the land of Special Needs, it’s nice to connect with each other.
- service.iuuuu 6 months ago
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Category Archives: Prader-Willi Syndrome
Little Miss Adorable is a tiny four year old with Prader Willi Syndrome (PWS). In addition to the inability to feel full after eating, one of the many traits of PWS is hypotonia – very poor muscle tone that makes … Continue reading
Our big news flash (I’ve mentioned it before, but here’s the official announcement): *trumpeting* Little Miss A is now walking on her own!!! Shortly before she turned four, she decided that hanging onto a stroller in a shopping mall wasn’t … Continue reading