Tag Archives: DMD

Nine.

Nine. A couple days ago a nine year old with Duchenne Muscular Dystrophy passed away. Nine years old. Nine. Dogs live longer than this child did. For you folks out there that know me, the long-time listeners, first time callers … Continue reading

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T-Ball Time! Strike three – you’re out!

Strike three –you’re out! Lately I’ve been reading other people’s blog posts and comments about the ‘unfair (dis)advantage’ of having kids with special needs on a team and the kids who are with younger peers.  Now, I need to be … Continue reading

Posted in Duchenne Muscular Dystrophy, Parenting | Tagged , , , , | 6 Comments

Deflazacort: Drugs and Duchenne MD

Deflazacort ™ is a steroid used in boys with Duchenne Muscular Dystrophy (DMD) to help preserve muscle mass.  Mr. Sensitive has DMD, and at the age of 4 is in the ‘good part’ of this disease.  As Mr. Sensitive gets older … Continue reading

Posted in Duchenne Muscular Dystrophy | Tagged , , , | 9 Comments