Tag Archives: hypotonia

The Official Story: She’s (Mall) Walking!

Little Miss Adorable is a tiny four year old with Prader Willi Syndrome (PWS).  In addition to the inability to feel full after eating, one of the many traits of PWS is hypotonia – very poor muscle tone that makes … Continue reading

Posted in Adventures of Little Miss Adorable, disABILTY, Prader-Willi Syndrome | Tagged , , | 2 Comments

In praise of the OTs in our lives

Two kids with special needs in one family means we have a lot of therapists in our lives. Speech. Physio. Behaviour. The list goes on because we have at least two of each therapist, sometimes one for each kid, at … Continue reading

Posted in Duchenne Muscular Dystrophy, Halfpastnormal is who we are, Prader-Willi Syndrome, Sensory Processing Disorder | Tagged , , , , | 2 Comments

The curious ‘wee-wee’ incident

Little Miss Adorable is a tiny preschooler with Prader-Willi Syndrome.  She had very poor muscle tone, and the muscles involved in speech are affected.  So her speech is really not clear.  As parents, we only understand about 30 percent of … Continue reading

Posted in Adventures of Little Miss Adorable, Langauge and Swearing, Speech | Tagged , , , | 4 Comments